2017 Research Grants:


Two-Year Grant Award Recipients


Dr. Sharon Byers – $90,000 general grant over two years

SA Pathology (WHC site)

Adelaide, Australia

“Can the cell cycle be reset to normal in the MPS growth plate chondrocytes?”



Prof. Elvira De Leonibus – $50,000 MPS III grant over two years

Telethon Institute of Genetics and Medicine (TIGEM)

Pozzuoli, Italy

“Disease mechanisms leading to dopaminergic dysfunction underlying behavioral symptoms in MPS IIIA”



Dr. Charbel Moussa – $120,000 MPS IIIA

Georgetown University

Washington, D.C.

“The Effects of Tyrosine Kinase Inhibition on MPS IIIA Mice”




Dr. Chet Whitley – $50,000 MPS IV grant over two years

University of Minnesota

Minneapolis, Minnesota

“Neurocognitive and neuroimaging of Morquio Syndrome – MPS IV”




One-Year Grant Award Recipients


Dr. Igor Nestrasil – $60,000 MPS I grant

Department of Pediatrics, University of Minnesota

Minneapolis, Minnesota

“Probing Oxidative Stress and Neuroinflammation as Potential Therapeutic Targets in MPS I”



Dr. Thomas M. Stulnig – $50,000 MPS II 

Clinical Division of Endocrinology and Metabolism, Medical University of Vienna

Vienna, Austria

“Metabolic, microstructural and functional hallmarks of brain alteration in Mucopolysaccharidosis type II.”




2018 Research Grants


Three grants will be awarded for syndrome-specific research, and research institutions will have the option to receive funds over the course of one or, two years.  The syndrome-specific grants awarded in 2018 will be divided as follows:

  1. MPS I (Hurler syndrome)
  2. One (1) $30,000 grant
  3. MPS III (Sanfilippo syndrome)
  4. One (1) $60,000 grant
  5. MPS IV (Morquio syndrome)
  6. One (1) $75,000 grant